The Fears of Fibromyalgia

You live in your head a lot when you have Fibromyalgia.

Nobody can see the extreme pain and fatigue you’re in day in and day out.

So you question yourself.

You question your future (and eventually your past).

Is this it? Is this my new life forever?

Will I always be in pain and too tired to be a productive human, a good mom and wife?

Fear creeps in.

Oh does fear creep in during those early stages of symptom onset.

It gets heavier and heavier with each flare, each agonizing touch, each zap and burn and twinge and shock.

From my experience, Fibromyalgia comes packaged with a whole bunch of fear of the unknown.

Because you don’t know how long your symptoms will last or how much it’ll impact your life.

I’ve written a list below of what I think are the fears of Fibromyalgia.

Can you relate to any of them?

From my experience, here are some of the common fears of Fibromyalgia:

That pain and fatigue will stop you forever
That you’ll sleep your life away
That your child won’t have the best parent they deserve
That life will pass you by
That symptoms will get worse
That more symptoms will show up
That you’ll never be old yourself again
That you’ll never have a healthy social life again
That doctors and loved ones and people will never understand
That clothes will never, ever feel good again
That every touch will keep hurting
That your child will get Fibromyalgia thanks to you
That there is no cure or quick solution
That fatigue won’t ever let up
That medication may not ever not be a part of your life
The extra toll on your body due to all the experimentation (gluten free, more exercise, emotional)
That just a wee bit too much stress will always send your body into flare overdrive
That people will think less of you and your condition because it’s invisible
That long days – like theme park days or even trips to the mall – are too much and will always be
That your job won’t ever help accommodate you
That you’re a burden to your loved ones especially during a flare
That all the money you’ve thrown into experimentation to help is a waste
That disability will be too hard to prove/get
That friends and family will judge you whether you stay silent or speak up
That fear of the unknown makes you a wimp because you won’t die, yet you’ll almost beg to die to not live at rock bottom forever

Read this next:

Your takeaway

Many things about Fibromyalgia could send a person into panic mode and become fearful for their future. Totally understandable!

Just know you’re not alone, because I’ve had these fears too. And I’m sure many others can raise their hands, too.

What fears would you add to this list? Feel free to share below.